For the first time in my life I am beginning to really understand what it feels like to be a ‘Handicapped’ person. There are probably many books and videos on the topic, and I imagine that personal care givers take courses on it. But as for me, I am officially enrolled in the Co-op program. On the dashboard of our vehicle we now have a card with a blue Handicapped Parking permit. I am now legally allowed to park in these extra wide spots nice and close to the entranceway. The last time we were shopping at Walmart, I saw a parking officer issuing a ticket to someone without a permit. For the first time I felt ‘vindicated’ instead of sorry for the hurried shopper. At our church and school, I noticed that the power push buttons to operate the door were not functional, and it bothered me for the first time. They may have been broken for some time, but I never noticed it before because it wasn’t important to me. Kids sometimes play with these buttons when their parents aren’t watching.
I need help showering and getting dressed in the morning because of the loss of fine motor movement in my hands. I cannot do belt buckles, buttons, or zippers anymore, so I am dependent on my wife to do that for me. Combing my hair, scratching the back of my head, cleaning my glasses is now a luxury of the past. I have noticed that handicapped people sometimes have hairs and dandruff on their shoulders, and food stains on their clothing. To my dismay, I see that I have it too at times, because I am not able to brush it off with my clawed hand. Sometimes I put my arm over the stain to cover it up. The other day someone shook my hand in a friendly greeting while I was holding a cup of coffee in the other hand. He shook it so hard that the coffee spilled all over my clean white shirt, tie, and dress pants. I felt like all that I had left of my dignity was my neat appearance, and now that was gone too! It was an honest mistake, but this was the first time I felt anger, not at God not at that man who shook my hand, but just grrrrr! It all boils down to pride, something I need to learn to let go of.
Another thing I notice is that some people bend over and talk louder to you than they did before, using a patronizing tone. Just because you cannot walk anymore, does not mean you are now hard of hearing or now have difficulty understanding. Having a separate handicapped accessible bathroom in a public building sure is nice if you need assistance. A handicapped stall in the men’s room doesn’t cut it when your wife needs to help you! I refuse to use the handicapped stall in the women’s bathroom, so I just grit my teeth and bear it until I get home. (Just a little hint for those who are building new churches.) I don’t mean to sound like a whiner, but maybe when you read these things it may make you realize, what a privilege it is to be independent and to be able to do things yourself. It is important for a handicapped person to be treated with dignity, respect, and to make provisions for them to have maximum independence. I hope it helps you to work with the handicapped in your community.
Wow this one really moved me, especially with "I surrender all" on the playlist. Uncle Jack, you give a new meaning to that phrase and your faith through all of the surrendering is so encouraging.
ReplyDeleteLove you both,
Lydia VM
Thanks for a great reminder! Wishing you the Lord's blessings, nearness and LOVE as you walk through this difficult journey. You are a blessing to so many, and your witness has been truly amazing. Thank you.
ReplyDeletePeople talking "down" to him Chris also found very difficult.
ReplyDeleteAccessibility is a big problem in many places, even hospitals. I think I was sometimes more frustrated than Chris when he could not go somewhere or use a bathroom.
Is someone doing passive exercises with you for your hands and arms and legs? That is very important.
Reading your blog sometimes makes me cry but I am also blessed by your witness of the Lord's faithfulness and goodness. Praying for you.
Mary VanD.
although i am not handicapped, i have lived with a brother who is for many, many years. i appreciate this post...it made me laugh and cry and nod in agreement. i have felt such anger and frustration on my brother's behalf. May God grant you strength to endure these hard changes...He knows what He's doing!
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