I am slowly, but surely losing more and more of my normal functions and abilities. That means, for example, a progressive loss of strength and control of my neck muscles. My head is hanging down more and it is getting difficult to control the mouse of my computer from my glasses. My jaw muscles are weaker, and it is more difficult to open my mouth in order to eat and have my teeth brushed. I am experiencing periodic spasms in my jaw muscles as well. This decline is not so obvious to my visitors, because it doesn't show on the outside, but the disease continues to progress.
Some days it is very hard for me to bear. I think 'how much more O Lord, how much longer'. But I need to be patient and wait for God's time, which is the best time. The Lord does not promise an easy journey, but He does promise His people a safe arrival. He promises to never leave us or forsake us, and that promise is true!